| by Scott Campbell |
| Jan 04, 2010 |
| 5 January- Rappahannock-Rapidan Autism Action Group meeting for
representatives from Rappahannock, Fauquier, Culpeper, Madison and Orange Counties. It is on Tuesday, January 5, 2010 from 10am to 12noon at the Fauquier Health Center, 500 Hospital Drive, Warrenton, VA 20186 (Bistro Bldg., Sycamore A Room). For more info, please contact Becky Boswell from Commonwealth Autism Service at bboswell@autismva.org or 804-355-0300 or 800-649-8481. 6 January- Arlington PARENT2PARENT MEETING on TUESDAY NIGHT, January 6th at 7:30 PM at Calvary Methodist Church, 2315 S. Grant St., Arlington, VA. Let's talk about what is going on -- some of the challenges we had during holidays and maybe something upcoming... We are here for you! Bring us your questions, concerns, etc. and discuss them in a confidential forum with other people who are or have been walking this walk through life! Who ever thought it would be like this? If you can't make a meeting, please feel free to call, (Julie at 703-869-7079) or e-mail, julieandjoanne@gmail.com. All discussions are confidential! We help by listening, or finding resources for you. DIRECTIONS/INFO For Parent2Parent Meetings at 2315 S. Grant St. (corner of 23rd Street S. and Grant St. S.; next to Crystal City. Eight blocks from Crystal City Metro). Enter the glass doors on S. Grant St. (closest to the parking lot). Follow the signs up and head up the stairs. There is plenty of parking and it's easy to find. We meet at the Calvary Methodist Church which kindly donates this space for our discussions. Reservations not necessary but are helpful for room setup: julieandjoanne@gmail or 703-869-7079. For more info about Parent2Parent contact Julie Katz (info above) or Jo Anne McKey at jmckey@comcast.net. 7 January- The next Fort Belvoir EFMP Parent Support group meeting will be held on January 7, 2010 from 1830 to 2030 at ACS, Bldg 200, Belvoir Road. Representatives from "Parents As Teachers" will be the subject matter experts and will discuss common parenting challenges and strategies for dealing with these behaviors: Winning at Mealtime, Bedtime Battles, Temper Tantrums and Child Stress. Please come to learn new ways to ease the stress of these behaviors and to share ideas. Tips will also be given on how to modify the strategies for older children. This subject has been requested by several parents, and it is very important for you to participate also please pass on to others who you feel may want to attend. Request your response ASAP to Ewa Fabijanczyk, EFMP Assistant, Army Community Service at 703-805-5435 or ewa.fabijanczyk@us.army.mil. 7 January- Proactive Parents workshop on Special Needs Trusts/Pooled Trusts- What are they? Why would you need one? How to you set one up? It is by KELLY THOMPSON, PLC and TIA MARSILI from The Arc of NoVA. Protect Medicaid benefits by establishing a special needs trust. Income or inheritance beyond a very small amount will cause ineligibility. Essential care for those with disabilities is so very expensive that most will rely on some form of public aid to make ends meet in the future. Be sure to protect those benefits. An attorney familiar with special needs trusts can help avoid financial pitfalls. Pooled trusts are also available for those who may have nobody to act as trustee. Come learn more. It is on Thursday, January 7th from 7 to 9:30pm at the Burke Community Church (Room 31A), 9000 Old Keene Mill Road, Burke, VA (at NE corner of FFX CTY PKWY and Old Keene Mill Road). RSVP to Beth Troutman at troutmanbeth@yahoo.com or at 703-346-2414. Walk-ins welcome, but prefer registration by email. FEE: $10 fee (room rental, copies, and other admin). Waived if you attended our last seminar on Financial Planning in November. 8 January- State Budget Hearing on Friday January 8, 2009 from 8:00 to begin line standing. Hearings start at 10:00am and go until the last speaker. it is at the Northern Virginia Community College, Annandale Campus (Ernst Center Theater), 8333 Little River Turnpike, Annandale, VA 22003. Directions are at http://www.nvcc.edu/about-nova/maps-directions/annandale/index.html. Background: Typically over 200 people of all ages and abilities show up to advocate for "A Life Like Yours" in some way. For over seven years The Arc and our partners have been very successful in securing dollars for building community supports. We have limited our speakers to deliver a powerful message, with many people standing behind in support. Goal this year: * THIS YEAR WE WOULD LIKE EVERYONE TO TELL HIS/HER STORY!!! * THIS YEAR WE WOULD LIKE TO HAVE OVER 400 PEOPLE ATTEND AND SPEAK!!! * THIS YEAR WE WOULD LIKE YOU TO INVITE YOUR LEGISLATOR TO JOIN YOU AS YOU SHARE YOUR STORY, INVITE THEM TOO How to Sign UP: Typically, speaker sign-up begins one hour prior to the hearing itself. In order to be among the first speakers on the list, plan to arrive early or have someone go to hold the place in the wait line and sign up the speaker. Speakers are taken in the order of registration. Each person may register only one speaker at a time. If a person has a physical disability or a hearing impairment, special arrangements can be made and, to make them, you may call the HAC phone number at 804.698.1590. Since comments are limited to 3 minutes per person (and it may be shortened based on the length of the hearing), we suggest that each speaker prepare for only 2 minutes worth of pointed and succinct comment. This should be practiced aloud and timed by the speaker in advance to be sure that it is about 2 minutes. We propose that each VAA member and Provider group commit to a one hour slot during the budget hearing!!! Which is probably closer to 5-10 speakers earlier in the day and 10-20 speakers later in the day after lunch. Speakers will have 3 minutes each and we would like all of our groups to get as close to 100 people in the crowd to emphasis the numbers of people and lives that will be impacted by the proposed budget cuts!!! Even if someone cannot speak for themselves it is VERY IMPORTANT to be present! 9 January- INTELLECTUAL DISABILITY COMMITTEE OF THE ARLINGTON COUNTY COMMUNITY SERVICES BOARD PRESENTS A FORUM FOR PARENTS ABOUT WAIVERS on SATURDAY, JANUARY 9, 2010 9:00 AM TO 11:00 AM in ROOM 7A ON THE 7TH FLOOR OF THE DHS BUILDING, 3033 WILSON BLVD, ARLINGTON VA 22201. An Arc of Northern Virginia staff member will present information about the MENTAL RETARDATION/INTELLECTUAL DISABILITY WAIVER, ELDERLY AND DISABLED CONSUMER DIRECTED WAIVER, and INDIVIDUAL AND FAMILY DEVELOPMENTAL DISABILITIES WAIVER. There will be a panel of Arlington parents whose family members (children and adults) whose family members use the Waivers. DHS staff members will be available to answer questions. Elevator access to the 7th floor must be granted by the security guard on the ground (G) level in the lobby. Free underground garage parking is available; enter off Highland Street behind the DHS building. The DHS building is across the street from the Clarendon Metro Station. Arlington County Government provides accommodations, e.g., sign language interpreters, Computer Aided Real-time Transcription (CART), audio amplification systems and alternate format materials for qualified individuals with disabilities as described in the Americans with Disabilities Act. To arrange for an accommodation, please call/email 703-228-1773 (TTY 703-228-1788)/ rpetross@arlingtonva.us. Please provide as much advance notice as possible. Requests for sign language interpreters must be made at least five (5) full business days in advance. 9 January- Sensory Friendly Movie. Please join AMC and the Autism Society for "Alvin and the Chipmunks 2". It is on Saturday, January 9, 2010 from 10:00 am to 12:00 pm at the AMC Tyson's (Mclean) - 703-734-6212, AMC Potomac Mills (Woodbridge) - 703-490-3801, and AMC Rio Cinemas (Gaithersburg) 301-948-6673. Cost is $6 per person. AMC Entertainment (AMC) and the Autism Society have teamed up to bring families affected by autism and other disabilities a special opportunity to enjoy new current in a safe and accepting environment on a monthly basis with the "Sensory Friendly Films" program. In order to provide a more accepting and comfortable setting for this unique audience, the movie auditoriums will have their lights brought up and the sound turned down, families will be able to bring in their own gluten-free, casein-free snacks, and no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing - in other words, AMC's "Silence is Golden" policy will not be enforced unless the safety of the audience is in question. 9 January- DCAP Monthly Meeting: Navigating the Financial World of the Special Needs Family. Our presenter will be Maedi Tanham Carney, CFP of M&L Special Needs Planning, LLC. The meeting is on Saturday, January 9, 2010 from 11am to 1pm at the Palasides Neighborhood Library, 4901 V Street, NW at 49th Street, NW Washington, DC 20007. This workshop is an overview of the journey of the special needs family. Specifically we discuss the special needs financial planning timeline pointing out and explaining the key pressure points for the special needs child. We discuss how the special needs family inevitably must plan for two generations. When discussing the timeline we give definitions to the special needs language at the specific pressure points. In addition, we discuss the special needs planning pyramid - traditional versus special needs planning. Specifically the differences for a special needs family in the areas of risk management, legal and estate issues, cash reserves, cash management & budgeting and wealth distribution. The intention of this workshop is to try and bring simplicity and understanding to a very complex and overwhelming topic. Please RSVP to info@dcautismparents.org. 9 January- Sen. Houck Hosts Education Funding Town Hall Meeting. In the wake of sagging economic revenues and its negative impact on public and higher education funding, I am hosting a town hall meeting on Saturday, January 9, 2010 at the Germanna Community College (Locust Grove Campus), 2130 Germanna Hwy, Locust Grove, VA 22508 from 10:00 a.m. until 12:00 p.m. My purpose in hosting this meeting is to begin communication with individuals concerned with public and higher education prior to the General Assembly's work on the Governor's introduced budget, which is expected to close a $3.5 billion shortfall in revenue. With many difficult decisions facing the General Assembly, it is important that I receive your feedback. Specifically, I want to hear from citizens concerning the budget reductions' effects on education in the 17th Senatorial District and the Commonwealth. Clearly, our communication has never been more important. Educators, parents and other interested citizens from Culpeper, Louisa, Madison, Orange, and Spotsylvania counties as well as the City of Fredericksburg are invited to attend. Likewise, Germanna Community College, Piedmont Virginia Community College, and University of Mary Washington representatives are invited to participate as well. The meeting will be open to the public and the media. 10 January- ASNV Baltimore Aquarium Trip announced by Kymberly DeLoatche, Executive Director of the Autism Society of Northern Virginia. I am happy to announce that ASNV is offering another afternoon of underwater adventure at the Baltimore Aquarium. We have a limited number of free tickets for Sunday, January 10 from 3:30pm to 7pm, that will be distributed on a first-come, first-serve basis to our families. To reserve your tickets please send an email to executivedirector@asanv.org and leave your name, your address and phone number and the number of tickets you wish to reserve. Children under 3 are free. Each family is limited to four tickets. Additional tickets can be purchased at the regular price upon your arrival or in advance at www.aqua.org. Our tickets include admission on Sunday January 10 at 3:00pm and open access to the entire facility including the cafeteria and gift shop. It also includes the dolphin show at 3:30pm and access to a quiet room for the entire stay. The facility closes at 7pm. We have arranged this opportunity in partnership with the Aquarium in order to increase the enjoyment of all our family members as the crowds tend to be low during this time and on a Sunday. Please plan to arrive at the Aquarium by 2:30pm in order to receive your tickets. Directions and parking information can be found at www.aqua.org. Stroller and other information will be sent to families reserving tickets. If you have any questions please do not hesitate to email me. "Facial reflexology comes to Salisbury" dated 27 December 2009 by Katie Scarvey from the Salisbury Post at http://www.salisburypost.com/Lifestyle/122709-Facial-reflexology "The World Within: Finding a good school" dated 29 December 2009 by JEAN ENERSEN from KING5 News at http://www.king5.com/health/childrens-healthlink/The-World-Within-Finding-a-good-school-79854837.html "The World Within: Independence for adults with autism" dated 29 December 2009 by JEAN ENERSEN from KING5 News at http://www.king5.com/health/childrens-healthlink/The-World-Within-Independence-79853692.html "Disabled Oakland University student wins housing fight- Judge orders Oakland U. to make dorm room available for man in program for disabled" dated 29 December 2009 by Marisa Schultz from The Detroit News at http://www.detnews.com/article/20091229/SCHOOLS/912290330/1409/METRO/Disabled-Oakland-University-student-wins-housing-fight "Family told to leave Canada because daughter has cerebral palsy" dated 29 December 2009 by Aaron Derfel from Canwest News Service (Canada) at http://www.canada.com/news/Family+told+leave+Canada+because+daughter+cerebral+palsy/2389837/story.html "FDA Addresses Lack of Data on Medications & Pregnant Women" dated 30 December 2009 from Opposing Views at http://www.opposingviews.com/articles/news-fda-addresses-lack-of-data-on-medications-pregnant-women "A path to acceptance and understanding" dated 30 December 2009 by Dirk Perrefort from the Danbury News Times at http://www.newstimes.com/news/article/A-path-to-acceptance-and-understanding-304046.php "Mom Describes Terror When Boyfriend Threatened Son" dated 30 December 2009 by Bill Hudson from WCCO News at http://wcco.com/crime/boy.tortured.sword.2.1397891.html "AMC offers autism friendly films" dated 30 December 2009 by James McGinnis from Philly Burbs.com at http://www.phillyburbs.com/news/news_details/article/92/2009/december/30/amc-offers-autism-friendly-films.html "Students to create charity book for autistic kids" dated 31 December 2009 by Nikki Jarvis from This Is Croydon Today (UK) at http://www.thisiscroydontoday.co.uk/latestnews/Students-create-charity-book-autistic-kids/article-1625717-detail/article.html "Riding school just the tonic for local disabled people- Christine and Nick Barratt-Atkin's dream was to open a centre providing riding therapy for the disabled. BARRY NELSON popped in for a ride" dated 31 December 2009 from the Darlington and Stockton Times (UK) at http://www.darlingtonandstocktontimes.co.uk/sport/4827462.Riding_school_just_the_tonic_for_local_disabled_people "Workshops offered on developmental disorders" dated 31 December 2009 from North Jersey.com at http://www.northjersey.com/community/events/80395707.html "Autism Speaks in the UK Announces a Change in Name to Autistica- Autistica Will Continue to Collaborate with Autism Speaks U.S. on Autism Research and Other Issues of Mutual Interest" dated 31 December 2009 in a press release from Autism Speaks at http://www.autismspeaks.org/press/autism_speaks_autistica.php "Age of Autism Awards: Steven Higgs, Best New Blogger" dated 31 December 2009 by Anne Dachel from the Age of Autism blog at http://www.ageofautism.com/2009/12/age-of-autism-awards-steven-higgs-best-new-blogger.html#more "Age of Autism Award Child of the Year: Sam Debold" dated 1 January 2010 from the Age of Autism blog at http://www.ageofautism.com/2010/01/age-of-autism-award-child-of-the-year-sam-debold.html#more "Entering the New Year as Public Enemy #1" dated 1 January 2010 by Kent Heckenlively, Esq. from the Age of Autism blog at http://www.ageofautism.com/2010/01/entering-the-new-year-as-public-enemy-1.html#more "Ketogenic Diets: An Update for Child Neurologists" dated 1 January 2010 by Kossoff, EH, Zupec-Kania BA, and Rho JM from the Journal of Child Neurology at http://autism.healingthresholds.com/research/ketogenic-diets-update-child-neurologists "Honest Holiday Thoughts From an Autism Mom" dated 2 January 2010 by Brooke Potthast from the Age of Autism blog at http://www.ageofautism.com/2010/01/honest-holiday-thoughts-from-an-autism-mom.html#more "Food For Thought" dated 3 January 2010 by Cecily Ruttenberg from the Age of Autism blog at http://www.ageofautism.com/2010/01/food-for-thought.html#more "Autism Resolutions: New Routine, Path & Hope" dated 3 January 2010 by Cathy Jameson from the Age of Autism blog at http://www.ageofautism.com/2010/01/autism-resolutions-new-routine-path-hope.html#more "MMR mum makes legal history" dated 3 January 2010 by Charles Graham by Wigan Today (UK) at http://www.wigantoday.net/wigannews/MMR-mum-makes-legal-history.5952381.jp "PBS Presents "This Emotional Life." Asperger's Segment Included." dated 3 January 2010 from the Age of Autism blog at http://www.ageofautism.com/2010/01/pbs-presents-this-emotional-life-aspergers-segment-included.html#more "TUNE IN: "This Emotional Life" in a press release from Autism Speaks at http://www.autismspeaks.org/inthenews/tunein_this_emotional_life.php "Evidence lacking for special diets in autism- An expert panel says there's no rigorous evidence that digestive problems are more common in children with autism compared with other children, or that special diets work, contrary to claims by celebrities and vaccine naysayers." dated 3 January 2010 by CARLA K. JOHNSON from The Associated Press at http://seattletimes.nwsource.com/html/nationworld/2010688565_autism04.html "Special Diets Lack Support As Autism Treatment, Expert Panel Finds" dated 4 January 2010 by Michelle Diament from the Disability Scoop at http://www.disabilityscoop.com/2010/01/04/gastrointestinal-review/6565 "New Report Outlines Evaluation, Diagnosis and Treatment of Gastrointestinal Issues in Children with Autism- Commonly Reported Symptoms Often Untreated Due to Communication Issues" dated 4 January 2010 by Carin Yavorcik in a press release from the Autism Society at http://www.autism-society.org/site/News2?page=NewsArticle&id=15543&news_iv_ctrl=1882 "Pediatrics Gastrointestinal Consensus Statement & Recommendations Provide First Step Toward Needed Guidelines for Children with Autism- Autism Speaks Advances Standards for Care to Alleviate Medical Problems of Children with Autism" dated 4 January 2010 in a press release from Autism Speaks at http://www.autismspeaks.org/press/gastrointestinal_treatment_guidelines.php "Abby: Lab mix adapts to students" dated 4 January 2010 by JERMAINE PIGEE from The Hawkeye at http://www.thehawkeye.com/story/Therapy-dog-1220093-sidebar "About that CDC Autism Press Conference Right Before Christmas" dated 4 January 2010 by Katie Wright from the Age of Autism blog at http://www.ageofautism.com/2010/01/katie-wright-about-that-cdc-autism-press-conference-right-before-christmas.html#more "Demand Now That IOM Includes Autism As Adverse Vaccine Event" dated 4 January 2010 from the Age of Autism blog at http://www.ageofautism.com/2010/01/demand-now-that-iom-includes-autism-as-adverse-vaccine-event.html#more "The Early Start Denver Model" dated 4 January 2010 by Vismara, LA, and Rogers SA from the Journal of Early Intervention at http://autism.healingthresholds.com/research/early-start-denver-model "Self-Organized Criticality Theory of Autoimmunity" by Ken Tsumiyama, Yumi Miyazaki, and Shunichi Shiozawa from the Kobe University Graduate School of Health Science (Japan) at http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0008382?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+plosone%2FPLoSONE+%28PLoS+ONE+Alerts%3A+New+Articles%29 |
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